Events

 

 

Vivint Competition 2011

 

Help the Whittemore Peterson Institute for Neuro-Immune Disease (WPI) win up to $250,000 (top prize)

Vote DAILY for the WPI (or as many days as you can) from now until August 27 2011, by clicking on the following image:

Please vote for WPI daily

 

For further details about the contest, click here:

Vivint Gives Back project

For more on the WPI, click here:

WPI logo

 

Chase Community Giving Competition 2011

Thanks to everyone who voted on Facebook in this competition! Two organisations involved in ME/CFS research won $90,000 between them in this competition:

- The Whittemore Peterson Institute for Neuro-Immune Disease won $25,000 in Round 1 and a further $40,000 in Round 2.

- The CFIDS Association of America won $25,000 in Round 1.

 

ME/CFS Awareness Month Activities (May 2011)

Free screenings of ME/CFS documentary "Invisible"

For ME/CFS Awareness Month, the Irish ME/CFS Association have arranged free screenings of the documentary on ME/CFS, "Invisible", in the following venues around Ireland during May 2011:

Lost Voices

Tralee, Co. Kerry - Thursday May 12 (International ME/CFS Awareness Day) Meadowlands Hotel http://www.meadowlandshotel.com/  7:30 PM

Mullingar, Co. Westmeath - Wednesday May 18
Greville Arms Hotel http://www.grevillearmshotel.ie/   8:00 PM

Ballyshannon, Co. Donegal - Saturday May 21
Creevy Pier Hotel http://www.creevy.ie/  12:00 Noon

Galway - Sunday May 22 (in conjunction with the Galway ME/CFS Support Group)
Pillo Hotel http://www.pillohotelgalway.com/  2.30pm
 
Dublin - Sunday May 22
Sandymount Hotel http://www.sandymounthotel.ie/location , Herbert Road (off Lansdowne Road)   3:00 PM

The documentary is one hour long. You can watch a clip at http://invisiblethemovie.com/

To read a review by an ME/CFS patient click here.

All are welcome. There will be a chance to chat to others afterwards.

 

Launch of updated booklet "A Sufferer's and Carer's Guide to Living With ME/CFS - A General Care Management Guide"

Lost Voices

 

 

We have launched an updated edition of this booklet. It contains information on management and treatments along with details of other bodies that may be of assistance.

Free copies are available by contacting us.

 

 

 

Information sent to all the Citizen's Information Centres in Ireland

 
CIC logo

As part of our activities for ME/CFS Awareness Month, we have sent posters, booklets and leaflets to all 108 of the Citizen's Information Centres in Ireland. We know that many people with ME/CFS turn to the Citizen's Information Centres for information due to the many challenges this illness can bring.

Poster image
Booklet image
Leaflet image
Poster
Booklet
Leaflet

 

 

2010

TV3's Morning Show featured M.E. (Sept 13th 2010)

TV3's "The Morning Show" with Sybil & Martin interviewed Sarah O'Callaghan, one of our members, about her battle with ME.

This program can be viewed at http://www.tv3.ie/videos.php?video=26890&locID=1.65.370

 

Open Garden event in aid of ME (June 2010) - Blackrock, Lifford, Co. Donegal

Belinda Mahaffy, who has a friend with M.E., opened her garden (part of the Donegal Garden Trail) again this June with donations taken in aid of the Irish ME/CFS Association.

Lost Voices

The garden was first established in 1972 by Belinda’s late mother, Mrs Jessie Mahaffy.  Belinda has cared for it since Jessie passed away in January 2008.

Details of the garden can be found at:
http://www.donegalgardentrail.com/gardens/14.jpg

There’s a map at:
http://www.donegalgardentrail.com/images/Map_Print.jpg (see garden no. 23b - click to zoom).

Last year’s event raised €880 for the Association - €440 for the research fund and €440 for the general fund which pays for everything else.

Photo: Belinda Mahaffy (left) presents Georgie Reilly with a cheque for €880, the proceeds of the Open Garden event in 2009.

 

2010 ME Awareness Month Activities

Talks by Dr. William Weir: "25 years of experience with ME: past reflections, present difficulties and future possibilities" (May 29 & 30)

Dr William Weir, a leading UK ME expert*, spoke in the following locations:

- Dublin: 1pm, Sat May 29. Mount Herbert Hotel**, Herbert Road, off Lansdowne Road, Dublin 4. Admission: 5 Euro. All welcome.

- Galway (in conjunction with the Galway ME Support Group): 2pm, Sun May 30. Courtyard Hotel, Headford Point, Headford Road (just off the Kirwin Roundabout and near the Galway Shopping Centre). Admission: 5 Euro. All welcome.

* Dr. Weir is a consultant physician/consultant in infectious diseases.
Having previously run an NHS ME clinic, he now sees patiently privately in Harley Street, London and Northern Ireland.

 

Information sent to all Public Libraries

The Irish ME/CFS Association has sent posters and leaflets on ME/CFS to all 359 public libraries, to help raise awareness of the illness, and to try to make information on ME/CFS available to the general public.

Lost Voices

A copy of the book, "Lost Voices from a Hidden Illness", has also been sent to all 32 local authority central libraries, with a view to having these books made available to anyone accessing their local library (via the interlibrary loans system).

"Lost Voices" was produced by the UK Charity, Invest in ME, to try to raise awareness of severe ME and the impact it has on both the affected individuals and their families. It is primarily written by people affected by severe ME (i.e. house-bound or bed-bound), whether as sufferers, carers or families. 

Further information on the book, and how to order it, can be read at:
http://www.investinme.org/LostVoicesBook/IiME%20Lost%20Voices%20home.htm